
The Sickle Cell Disease Association of America (SCDAA) designated September as National Sickle Cell Awareness Month.
Sickle cell disease (SCD) is an inherited group of blood disorders which includes sickle cell anemia, a specific form of SCD. With SCD, there is an abnormality in the protein, hemoglobin, found in red blood cells which carries oxygen to bodily organs and tissues. The normally disc-shaped red blood cells are instead sickle-shaped, stiff, and can stick together so do not easily move through blood vessels. This causes blood clots and a disrupted blood flow which can cause pain and a host of serious health problems like anemia, infections, and stroke. Another complication of SCD is damage to organs such as the liver and especially the spleen. In the U.S., sickle cell disease most commonly affects African-Americans, but also affects people from Hispanic, southern European, Middle Eastern, and Asian Indian backgrounds.
UW Resources
Living with and Surviving Sickle Cell Disease (print, 2017)
Anatomy model: Liver and Gall Bladder (blood-vessel-system of the liver). Library Use Only.
Local Resources and Events
- Metropolitan Seattle Sickle Cell Task Force (MSSCTF), The Sickle Cell Podcast. From the website: "Each season brings together patients, doctors, advocates, and families to explore the realities of living with Sickle Cell Disease-- and the breakthroughs changing lives.
- Walk Run & Bike for Sickle Cell: Saturday, September 12th, 2026 9:00 a.m. to 1:00 p.m. Seward Park, 5900 Lake Washington Blvd. S, Seattle, WA.
- Camp Korey in Washington State, A SeriousFun Camp for children with serious medical conditions and their families. Event: Session 6, Sickle Cell & Hemophilia [August 2-6, 2026].
- Seattle Public Library, books and movies about sickle cell.
- KD Hall Foundation, 5th Annual Sickle Cell Awareness & Community Blood Drive: Friday, September 11th, 2026 10:00 a.m. to 4:00 p.m. American Red Cross Seattle Blood Donation Center x Conference Rooms, 1900 25th Ave S, Seattle, WA 98144
National Resources
- National Heart, Lung, and Blood Institute (NHLBI) Sickle Cell Disease pages (also in Spanish, last updated December 10, 2025).
- The Cure Sickle Cell Initiative YouTube playlists of videos.
- Centers for Disease Control and Prevention (CDC) "Women with Sickle Cell Disease and Prenatal Care: What to Know During Pregnancy" (factsheet)
Articles & Evideo
Pulmonary Disease Burden in Hispanic and Non-Hispanic Children with Sickle Cell Disease. Pediatric Pulmonology, 2020.
Sickle Cell Disease and Social Determinants of Health: A Scoping Review. Pediatric Blood & Cancer, 2023.
This is the First Person in Louisiana to be Cured of Sickle Cell Disease Using Gene Therapy. Washington Post Video, 2026.

